Just over a year ago, I wrote a blog singing the praises of the Rare Drug Development Symposium co-sponsored by Global Genes and the Orphan Disease Center at the University of Penn.  In my opinion, there were three defining characteristics of this event that set it apart from the rest. The Right People (Patients, family,…

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Sometimes you get the chance to experience something that resets your expectations. The Salem Oaks team had the opportunity to attend the Rare Patient Advocacy Symposium in Philadelphia on May 19, 2018.  The event was organized in partnership between Global Genes and the Orphan Disease Center at UPenn.  Although I may have only recently jumped…

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