Resources

We recommend these resources to learn more about drug development, patient experiences, advocacy, the history of medicine, and more.

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We Carry Kevan: Six Friends. Three Countries. No Wheelchair.

If he had not put it in the title and mentioned it in the prologue, Kevan would have written a great story of friends on trip to wonderful places. It seems they are always stopping for some good food, beer, and/or music.  When you add in the fact that Kevan was born with spinal muscular atrophy…
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Book Cover: We Carry Kevan

The Drug Hunters: An Improbable Quest to Discover New Medicines

This book provides a comprehensive behind the scenes history of the search for new medicines. The authors take us back to the labs to see how the discovery of medicine went from individual trial and error to industrial scale research.  By weaving in the history of what was happening around the researchers, the authors help us…
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Book Cover: The Drug Hunters

Shifting into High Gear: One Man’s Grave Diagnosis and the Epic Bike Ride That Taught Him What Matters

The author has led an amazing life.  He has biked across America, climbed mountains, started a podcast, created a fundraising powerhouse, and even become an Uber driver.  In this book he tells us how all this got started with a life-changing diagnosis and the need to do something, anything to respond.  During his first big trike ride, the…
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Book Cover: Shifting Into High Gear

Principles and Practices of Clinical Research 4th Edition

This is a great reference book for anyone interested in broad aspects of drug discovery and development.  The book covers history; ethics, regulations and law, study design and biostatistics; technology transfer, data management, sources of research funding; and clinical research infrastructure.  With so much content, this book is not likely to be read cover-to-cover.   The fourth edition, published…
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Miracle Cure: The Creation of Antibiotics and the Birth of Modern Medicine

It’s hard to believe that a little over a century ago, there were no truly effective treatments for infectious diseases.  The author takes us back to those times and we follow the advancements in medicine led by ambition, war, and capitalism.  The blend of scientific, political, and business stories is entertaining and educational.  
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Book Cover: Miracle Cure

Chasing My Cure

This is a remarkable story of a remarkable young man’s life and death struggle with Castleman Disease, a rare disease in which the body’s immune system attacks the body itself.  Dr. Fajgenbaum devotes his life to fighting this disease.  His story is personal, exciting, and groundbreaking.  In fact, he is now trying to replicate the success he had…
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Book Cover: Chasing My Cure