News & Publications
Sometimes you get the chance to experience something that resets your expectations. The Salem Oaks team had the opportunity to attend the Rare Patient Advocacy Symposium in Philadelphia on May 19, 2018. The event was organized in partnership between Global Genes and the Orphan Disease Center at UPenn. Although I…
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Read MoreI remember the day vividly. It was cold and rainy, the night before Thanksgiving. I was sitting in an oncologist’s office and she said those words, “You have cancer and I am not able to treat you. You are going to need to see a specialist.” It was official, I…
Read MoreWe need to help people understand their rights to information (and to privacy) when they choose to help care for a family member. The article points out many barriers to family members effectively assisting in the care of loved ones. http://bit.ly/2DLfTD6 This situation seems similar to writing one’s last will and…
Read MoreI found this quite ironic. “Physician, first heal thyself…” http://bit.ly/2Gv2Oj6 TweetShareShare0 Shares
Read MoreTwenty years ago, today, I woke up and had cancer. I had no idea what the day would bring. It had been about two months since I was diagnosed with myxoid liposarcoma in my left thigh. TweetShareShare3030 Shares
Read MoreOver the past weeks, I have discussed several barriers that make it difficult to involve patients in developing new medicines as much as everyone involved would like. My theory is that we need to do a better job educating patients. I’d love to hear your thoughts on this topic. Some of these barriers…
Read MoreChoices. Have you ever found yourself in an unfamiliar city trying to get from point A to point B as quickly as possible? Taxi? Bus? Subway? Traffic scares you, so the subway it is. You stare at the nicely designed kaleidoscope of a map and try to make sense of which…
Read MoreAs the winter approaches here in New England, the picture above caught my eye. What do you see? Is the sun setting… or rising? What’s up? What’s down? Where was the picture taken? When? How can you be sure? Did my opening line influence you? Introduction There seems to be a consensus from all…
Read MoreThe journey to a new medicine is a challenging, uphill, and winding road. Whenever a patient gets involved in medicines development, they are likely to face a roller coaster of hopefulness and despair like they have never experienced. Since only about 5% of the compounds and proteins put into advanced testing a…
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