News & Publications

Oak Tree

Peace in strength.  Like the mighty oak that has survived some 600 years in what is now my back yard, we engage with experience and resilience.  Whether the winds blow hard or the sun shines bright, we go on, deeply rooted and stretching for the heavens.

Strength in peace.  Many challenges of the world, and Pharmaceutical R&D, grow out of mere misunderstandings.  We seek to enhance mutual understanding and peaceful cooperation toward shared objectives.

- Peace and Strength by Kevin Freiert

Photo by Daniel Garcia on Unsplash

We Don’t Have 5 years!!

By Kevin Freiert | Jun 13, 2018

The moment was awkward. We had invited in a handful of patients who had the disease we were working to treat to our annual Development Team all-hands meeting.  We wanted to learn from them and to be motivated by them. They poured their hearts out to us.  They told us…

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This Symposium Was Truly Rare

By Kevin Freiert | May 28, 2018

Sometimes you get the chance to experience something that resets your expectations. The Salem Oaks team had the opportunity to attend the Rare Patient Advocacy Symposium in Philadelphia on May 19, 2018.  The event was organized in partnership between Global Genes and the Orphan Disease Center at UPenn.  Although I…

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Who would Vote Against Patients’ Right to Try?

By Kevin Freiert | Mar 31, 2018

http://bit.ly/NoR2T 

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Introducing Salem Oaks: Empowering Patients to Shape the Future of Medicine

By Kevin Freiert | Mar 9, 2018

I remember the day vividly. It was cold and rainy, the night before Thanksgiving. I was sitting in an oncologist’s office and she said those words, “You have cancer and I am not able to treat you. You are going to need to see a specialist.” It was official, I…

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How to Incorporate Family Caregivers in Chronic Care Management

By Kevin Freiert | Jan 30, 2018

We need to help people understand their rights to information (and to privacy) when they choose to help care for a family member. The article points out many barriers to family members effectively assisting in the care of loved ones. http://bit.ly/2DLfTD6 This situation seems similar to writing one’s last will and…

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Patient Engagement Strategies Lack Patient Voice, Consumer Input

By Kevin Freiert | Jan 30, 2018

I found this quite ironic.  “Physician, first heal thyself…” http://bit.ly/2Gv2Oj6

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How many blessings can be squeezed into 20 years?

By Kevin Freiert | Jan 28, 2018

Twenty years ago, today, I woke up and had cancer. I had no idea what the day would bring.  It had been about two months since I was diagnosed with myxoid liposarcoma in my left thigh. 

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Educating Patients: Taking Action to Refocus and Accelerate

By Kevin Freiert | Oct 30, 2017

Over the past weeks, I have discussed several barriers that make it difficult to involve patients in developing new medicines as much as everyone involved would like. My theory is that we need to do a better job educating patients.  I’d love to hear your thoughts on this topic. Some of these barriers…

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