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Oak Tree

Peace in strength.  Like the mighty oak that has survived some 600 years in what is now my back yard, we engage with experience and resilience.  Whether the winds blow hard or the sun shines bright, we go on, deeply rooted and stretching for the heavens.

Strength in peace.  Many challenges of the world, and Pharmaceutical R&D, grow out of mere misunderstandings.  We seek to enhance mutual understanding and peaceful cooperation toward shared objectives.

- Peace and Strength by Kevin Freiert

Episode 2: Kyle Bryant: Remember Why We Are Doing All This

By Heather McCullen | Oct 9, 2019

We welcome Kyle Bryant of the Friedreich’s Ataxia Research Alliance (FARA) to discuss his journey as a patient with Friedreich’s Ataxia (FA), as an active patient leader, and in his job as a liaison between the FA community and researchers. After being diagnosed with FA when only 17 years old,…

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Finding Our Crack in the Ice

By Kevin Freiert | Oct 8, 2019

She encouraged each of us to find our crack in the expansive ice of rare disease and drive a wedge into it. The effort of everyone continually working their own little crack (science, policy, direct experience, economics, medicine, fundraising, advocacy, or whatever) will eventually weaken the ice enough to shatter it. Together we can beat these diseases. This got me thinking about the contribution of Salem Oaks.

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Remember Why We Are Doing All This

By Kevin Freiert | Oct 7, 2019

Meet Kyle Bryant On our next episode of Improbable Developments we welcome Kyle Bryant of the Friedreich’s Ataxia Research Alliance (FARA) to discuss his journey as a patient with Friedreich’s Ataxia (FA), as an active patient leader, and in his job as a liaison between the FA community and researchers.…

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Anything but Ordinary

By Jamie Roger | Oct 3, 2019

Our experience at Global Genes Rare Patient Summit I think what needs to be pointed out in that title, is the word RARE.  This conference is anything but ordinary.  The attendees are amazing and consist of a diverse population of patients, experts, consultants, and advocates who are all teaming together…

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Episode 1: David Fajgenbaum, MD, MBA, MSC, FCPP

By Heather McCullen | Sep 25, 2019

Chasing My Cure: A Doctor’s Race to Turn Hope Into Action We are honored to have Dr. David Fajgenbaum as our first guest on Improbable Developments. His story is intense. Before he even earned is medical degree, he was faced by a rare life-threatening illness for which there was no…

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It’s your first day

By Jamie Roger | Sep 4, 2019

Right now, you are alone.  When a college student arrives on campus for their first day of freshman year, they are typically alone.  They haven’t yet found a close friend, they haven’t started classes yet to meet anyone, and their roommate is more than likely a stranger.  They are a…

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Back-to-School = Busy Schedules

By Kevin Freiert | Sep 4, 2019

I don’t know how this happens.  I haven’t been formally in school for 25 years, but my calendar seems totally unable to shake the habit of “getting ready” for the next academic year.     And the same seems to be true for Salem Oaks!  We have so much planned for…

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Welcome to Improbable Developments!

By Salem Oaks | Sep 1, 2019

In this, our first episode, Kevin lays out the objectives and plan for the Improbable Developments podcast. He also shares a personal story about a medicine he worked on earlier in his career.

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