News & Publications
Peace in strength. Like the mighty oak that has survived some 600 years in what is now my back yard, we engage with experience and resilience. Whether the winds blow hard or the sun shines bright, we go on, deeply rooted and stretching for the heavens.
Strength in peace. Many challenges of the world, and Pharmaceutical R&D, grow out of mere misunderstandings. We seek to enhance mutual understanding and peaceful cooperation toward shared objectives.
- Peace and Strength by Kevin Freiert
We welcome Kyle Bryant of the Friedreich’s Ataxia Research Alliance (FARA) to discuss his journey as a patient with Friedreich’s Ataxia (FA), as an active patient leader, and in his job as a liaison between the FA community and researchers. After being diagnosed with FA when only 17 years old,…Read More
She encouraged each of us to find our crack in the expansive ice of rare disease and drive a wedge into it. The effort of everyone continually working their own little crack (science, policy, direct experience, economics, medicine, fundraising, advocacy, or whatever) will eventually weaken the ice enough to shatter it. Together we can beat these diseases. This got me thinking about the contribution of Salem Oaks.Read More
Our experience at Global Genes Rare Patient Summit I think what needs to be pointed out in that title, is the word RARE. This conference is anything but ordinary. The attendees are amazing and consist of a diverse population of patients, experts, consultants, and advocates who are all teaming together…Read More
Chasing My Cure: A Doctor’s Race to Turn Hope Into Action We are honored to have Dr. David Fajgenbaum as our first guest on Improbable Developments. His story is intense. Before he even earned is medical degree, he was faced by a rare life-threatening illness for which there was no…Read More
Right now, you are alone. When a college student arrives on campus for their first day of freshman year, they are typically alone. They haven’t yet found a close friend, they haven’t started classes yet to meet anyone, and their roommate is more than likely a stranger. They are a…Read More