Salem Oaks News Archives

Carol Marzetta: Living to Help Other People

This month listen to Dr. Carol Marzetta talk about how the urge to help other people has shaped her career and her life. From her earliest days as a Discovery Biologist, she has found her passion in work that tries to help people in need. She shares with us some stories about the emotional pendulum around some…

Salem Oaks and The Friedreich’s Ataxia Research Alliance Are Partnering on Course on Clinical Trial Protocols

FOR IMMEDIATE RELEASE Contact: Heather McCullen, Salem Oaks LLC Phone: 518.791.8812 Email: heathermccullen@salemoaks.com Salem Oaks and The Friedreich’s Ataxia Research Alliance Are Partnering on Course on Clinical Trial Protocols January 3, 2020—Salem Oaks, LLC and The Friedreich’s Ataxia Research Alliance (FARA) are excited to announce a partnership to offer a new learning opportunity for FARA Ambassadors. Through funding…

Looking Back at Our Growth in 2019

Writing goals and expectations at the beginning of each year is a double-edged sword. On one hand, it is critical to provide some semblance of focus in the midst of all the activity around us. On the other, when looking back we see just how uninformed we were. Like trees, we don’t know what is…

Donald Kirsch: Getting to Know a Drug Hunter

We’ve all been there. You are at a party and someone asks, “So, what do you do?” Dr. Kirsch always found it hard to explain his career as a discovery scientist. He decided to write a book about it. The Drug Hunters: An Improbable Quest to Discover New Medicines is a colorful, fact-filled narrative history of the search for new medicines…

Episode 3: Hope Can Be Curative.

David Pearce Ph.D., Sanford Research Leader Today we hear from David Pearce, PhD, President of Innovation and Research, Sanford Health and Vice Chair, Consortium Assembly, International Rare Disease Research Consortium (IRDiRC) Dr. Pearce’s rare disease background emanates from publishing over 100 research papers on Batten Disease. David talks to us about how he got involved in…

Episode 2: Kyle Bryant: Remember Why We Are Doing All This

We welcome Kyle Bryant of the Friedreich’s Ataxia Research Alliance (FARA) to discuss his journey as a patient with Friedreich’s Ataxia (FA), as an active patient leader, and in his job as a liaison between the FA community and researchers. After being diagnosed with FA when only 17 years old, Kyle has dedicated his life…

Finding Our Crack in the Ice

She encouraged each of us to find our crack in the expansive ice of rare disease and drive a wedge into it. The effort of everyone continually working their own little crack (science, policy, direct experience, economics, medicine, fundraising, advocacy, or whatever) will eventually weaken the ice enough to shatter it. Together we can beat these diseases. This got me thinking about the contribution of Salem Oaks.

Remember Why We Are Doing All This

Meet Kyle Bryant On our next episode of Improbable Developments we welcome Kyle Bryant of the Friedreich’s Ataxia Research Alliance (FARA) to discuss his journey as a patient with Friedreich’s Ataxia (FA), as an active patient leader, and in his job as a liaison between the FA community and researchers. After being diagnosed with FA…

Episode 1: David Fajgenbaum, MD, MBA, MSC, FCPP

Chasing My Cure: A Doctor’s Race to Turn Hope Into Action We are honored to have Dr. David Fajgenbaum as our first guest on Improbable Developments. His story is intense. Before he even earned is medical degree, he was faced by a rare life-threatening illness for which there was no treatment, let alone cure. Tune…

Back-to-School = Busy Schedules

I don’t know how this happens. I haven’t been formally in school for 25 years, but my calendar seems totally unable to shake the habit of “getting ready” for the next academic year. And the same seems to be true for Salem Oaks! We have so much planned for the fall that we thought…