Anything but Ordinary

Our experience at Global Genes Rare Patient Summit I think what needs to be pointed out in that title, is the word RARE.  This conference is anything but ordinary.  The attendees are amazing and consist of a diverse population of patients, experts, consultants, and advocates who are all teaming together to try to drive change…

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This Symposium Was Truly Rare

Image of a complicated highway intersection

Sometimes you get the chance to experience something that resets your expectations. The Salem Oaks team had the opportunity to attend the Rare Patient Advocacy Symposium in Philadelphia on May 19, 2018.  The event was organized in partnership between Global Genes and the Orphan Disease Center at UPenn.  Although I may have only recently jumped…

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