Guest Author Archives

Testimonial: Partnering with Salem Oaks

Through their convenience and accessibility, podcasts have become a valuable tool in offering comfort, shared experiences, education, and valuable insights to the patient communities they serve. We partnered with Salem Oaks for their experience and knowledge of podcasts and the rare disease patient community. Kevin is an experienced host who has a warm demeanor and…

Introducing Empowered Together

Guest Post When my daughter was diagnosed at six with Wiedemann Steiner Syndrome, we already knew we were on a rare path. She had missed milestones, communicated in unique ways, and displayed biological markers of a rare syndrome. I was learning on the fly and seeking out support wherever I could find it. The problem…

“The group at Salem Oaks has and continues to develop a deep understanding of the science, research, and treatment landscape in the FA space.”

A customer testimonial One of our goals at FARA is to deliver high quality educational materials to our patient community to help them understand the drug development process so that they can effectively and confidently participate in research. Salem Oaks helped us to create a series of videos that have helped our patients understand the…

“We couldn’t have done this without the Salem Oaks team.”

A customer testimonial COVID-19 caused disruption for many non-profits, even for those of us who predominantly work in a virtual environment. Barth syndrome is an ultra-rare condition. We are aware of approximately 150 people diagnosed with Barth syndrome in the US. We typically host a biennial conference on even years but due to the risk…

Confidence is Key By Guest Author Dillon Head

In life, you’re given a gift; confidence. What you do with that gift is up to you and only you. In my life I have also been given a few other “gifts” that I didn’t ask for, opened, and now I have to deal with them. At age 15 or 16 I, as well as…