She encouraged each of us to find our crack in the expansive ice of rare disease and drive a wedge into it. The effort of everyone continually working their own little crack (science, policy, direct experience, economics, medicine, fundraising, advocacy, or whatever) will eventually weaken the ice enough to shatter it. Together we can beat these diseases. This got me thinking about the contribution of Salem Oaks.Read More
Meet Kyle Bryant On our next episode of Improbable Developments we welcome Kyle Bryant of the Friedreich’s Ataxia Research Alliance (FARA) to discuss his journey as a patient with Friedreich’s Ataxia (FA), as an active patient leader, and in his job as a liaison between the FA community and researchers. After being diagnosed with FA…Read More
Right now, you are alone. When a college student arrives on campus for their first day of freshman year, they are typically alone. They haven’t yet found a close friend, they haven’t started classes yet to meet anyone, and their roommate is more than likely a stranger. They are a single human trying to get…Read More
I don’t know how this happens. I haven’t been formally in school for 25 years, but my calendar seems totally unable to shake the habit of “getting ready” for the next academic year. And the same seems to be true for Salem Oaks! We have so much planned for the fall that we thought…Read More
We dare to imagine a world in which people are equipped to collaborate to successfully shape the health ecosystem of the future. There is an awful lot of thought behind the mission of Salem Oaks. I’d like to take a few minutes to pull it apart and offer what we believe are the key elements.…Read More
Lost is a starting point. It’s okay to be lost and not in control. But nothing is going to change if you don’t start. Start talking to someone, start educating yourself, start finding other people who may be lost. The most valuable component of your mental health is being aware of it, and what you…Read More
Salem Oaks’ portfolio of online courses is growing rapidly. Since last month, we launched two new modules in the R&D decision-making series, bringing the total to four. Check them out and see where we are going next!Read More
Resources are great. But what if you don’t know that they exist, or where to find them? Patient foundations are an invaluable collection of resources for their respective patient groups. They offer support, various libraries of information and disease facts, resources (financial, medical, community oriented, mental health services, etc.) and, if available, access to patient…Read More
The second module in our series on Decision Making in Pharmaceutical Research and Development will dive a little deeper into the decisions about selection, funding, and support for Research Projects. The underlying goal of our new course is to help equip you to be an effective part of a Research Team. Are you ready?Read More
At Patients as Partners, our panel spoke about HOPE and asked the audience to think about a few questions.
–What is the power of hope?
–How much is hope worth?
–How much value do you create each time you give or receive hope?