Blog
Peace in strength. Like the mighty oak that has survived some 600 years in what is now my back yard, we engage with experience and resilience. Whether the winds blow hard or the sun shines bright, we go on, deeply rooted and stretching for the heavens.
Strength in peace. Many challenges of the world, and Pharmaceutical R&D, grow out of mere misunderstandings. We seek to enhance mutual understanding and peaceful cooperation toward shared objectives.
- Peace and Strength by Kevin Freiert
Navigating Medical Research & Development Ahead of the Curve
Industry data show that drug discovery and development can take 12-15 years. It is an extremely complex multi-layered process that always seems to have just one more step. Patients and parents in the rare disease community just want to get the treatments they desperately need as quickly as possible. If you are one of those…
Testimonial: Partnering with Salem Oaks
Through their convenience and accessibility, podcasts have become a valuable tool in offering comfort, shared experiences, education, and valuable insights to the patient communities they serve. We partnered with Salem Oaks for their experience and knowledge of podcasts and the rare disease patient community. Kevin is an experienced host who has a warm demeanor and…
The Power of Unplugging
By Kevin Freiert My wife and I recently had the opportunity to take a trip to Israel. In addition to the wonderful sites, the new friendships we made with others in our tour group, and the joy of strengthening our faith; we by necessity had to just unplug from work. Sure, Israel has good internet…
Introducing Empowered Together
Guest Post When my daughter was diagnosed at six with Wiedemann Steiner Syndrome, we already knew we were on a rare path. She had missed milestones, communicated in unique ways, and displayed biological markers of a rare syndrome. I was learning on the fly and seeking out support wherever I could find it. The problem…
A Safe Place to Practice My Story
By Kevin Freiert Life has a way of filling up quickly. Having a rare disease, or being a caregiver to someone who does, makes every day feel a little busier, doctors’ appointments more frequent, and the list of things to remember a little longer. When asked to share your story, it is easy to lose…
“The group at Salem Oaks has and continues to develop a deep understanding of the science, research, and treatment landscape in the FA space.”
A customer testimonial One of our goals at FARA is to deliver high quality educational materials to our patient community to help them understand the drug development process so that they can effectively and confidently participate in research. Salem Oaks helped us to create a series of videos that have helped our patients understand the…
“We couldn’t have done this without the Salem Oaks team.”
A customer testimonial COVID-19 caused disruption for many non-profits, even for those of us who predominantly work in a virtual environment. Barth syndrome is an ultra-rare condition. We are aware of approximately 150 people diagnosed with Barth syndrome in the US. We typically host a biennial conference on even years but due to the risk…
2022: A New Beginning
by Jamie Roger The last few years have been hard. Hard for humans, and equally as hard for a business that just started to feel growth before COVID put projects, funding, and plans at a standstill. 2022 felt like a new beginning. We were able to travel again to see so many familiar and lots…
The Shortest Timeline to a COVID Vaccine
Dr. Stephen Hahn, Commissioner of the FDA has stated that the FDA will be able to grant Emergency Use Authorization before the end of the Phase 3 Trials. That is absolutely true but the ends of the Phase 3 Trials are in 2022.
The real question is,
“When is the earliest that an Emergency Use Authorization could legitimately be announced?”