This is a story you want to follow Imagine the excitement of becoming a new parent and then within hours finding out your child has a serious developmental disorder.  What would your reaction be?  Where would you go for help?  Who would you call?   There are no instructions for a young mother and father to…

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Rob Weker’s story is remarkable for many reasons. First and foremost, he has beaten cancer.  Not once. Not twice. But three times.  Getting the third diagnosis, this time it was pancreatic cancer, really got his attention. Only 7% of pancreatic patients live beyond 5-years. I met Rob at last year’s Patients as Partners conference and really…

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If you’ve read our previous two articles you know why Salem Oaks focuses on patient education, you know a bit about what problem based learning is and why it’s our preferred method, but can you see how you or your organization can use what we offer?   The Friedreich’s Ataxia Research Alliance (FARA) is “dedicated to the pursuit of scientific research…

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