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Archive for June 2019

Don’t Miss This Rare Chance to Learn

Just over a year ago, I wrote a blog singing the praises of the Rare Drug Development Symposium co-sponsored by Global Genes and the Orphan Disease Center at the University of Penn.  In my opinion, there were three defining characteristics of this event that set it apart from the rest. The Right People (Patients, family,…

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Summer Reading: Books That Matter

What makes a good story? I have recently had the opportunity to read several books written by people who are faced with some sort of medical adversity.  This has only reinforced my love for a good story, especially one that teaches lessons beyond the action.  Each of these books started with something familiar, something I…

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